Friday was a pretty good day. I was able to get some work done, even if it was from the comfort of my bed. I made a portable gaming station by putting Eli's gaming monitor and XBOX on a rolling cart so he could play some Rocket League in the living room. His pain was pretty manageable and his laughter while he was watching the Tom Brady roast was music to my ears. I made Indian food for dinner and we relocated Eli to his room and he played some games with his friends until he went to sleep.
Oh, and the Dodgers won. Eli was rooting for them, so there.
However, he called me at around 12:45am as medication was wearing off because he was in pain, but his next dose of Tylenol wasn't due for another almost hour. We were also given something stronger if the pain got worse with direction to take 1-2 pills, so I gave him one of those but he was still in pain and couldn't get comfortable. I decided to stay the night in his room so I could keep a close eye on him. He did pass out for a couple of hours, but that was about it. Neither one of us got much sleep.
We decided to up the dosage to 2 of the extra strength pain pills and that seemed to do the trick. He was able to take some cat naps on the couch and was in much better spirits. He got a special delivery from Crumbl from a friend/baseball teammate. THANK YOU A.Mes!
One of his bestest and oldest friends stopped by in the evening with some goodies and to hang and watch some college football with him.I assembled his shower chair (thank you, Amazon Prime!)
His appetite was good, but not quite putting it away like he usually does.
More buddies stopped by to watch the BSU game with our couch potato.
That brings us to Monday (today!), which was the best day he's felt thus far. His appetite seems to have fully returned and he was hungry and then still hungry. I will cook for him forever. He had the Dodger game on and I printed out a picture of Max Muncy because Eli complains every time he's up to bat.
We got a sweet delivery of a yummy box of goodies to reheat and stock the fridge and freezer.
The best thing about today was dialing back his pain meds and hearing him playing games with his friends and making his silly voices.
We meet with the oncologist tomorrow morning. The prelim pathology results of the biopsy have confirmed osteosarcoma. The stage/grade will be determined by another lab to determine size of tumor cells and how fast they are growing. This week might be our last normal-ish week before everything starts to get even more real.
Thank to everyone who is checking in, reaching out, dropping by, praying, lighting candles and keeping Eli and our family in your thoughts, hearts and prayers. We can feel the love and support from all of you and it is giving our boy courage and strength.
I will update tomorrow once we know more.
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